Genetic testing is becoming more widely available to consumers, and for better or worse, it could shed light on the presence of genes linked to a higher risk of developing Alzheimer's. Considering genetic testing? Tell us why (or why not) in our new survey.
Please consider taking 10 minutes to take our survey on genetics.
After I launched Being Patient, I learned there is a large population of people out there hungry for better information on genetics — because some genes (like ApoE4) mean a much higher risk of Alzheimer’s, while others can protect us from it. We’ve watched the demand for this information grow, as more people are opting for genetic testing, or finding out in some other way that they have a genetic relationship to neurodegenerative disease.
The community of people who carry ApoE4 and other genes associated with Alzheimer’s are also playing a very important role in research. This group could help unlock the mystery of disease treatment, or even prevention. But the decision about whether or not you’re interested in taking a genetic test is a big one, because we know we’re often not just making that choice for ourselves — rather, it’s a decision that can have implications for any entire family.
This month, Being Patient is running a new survey on genetics and familial Alzheimer’s. We’re seeking answers to questions like: If you’ve done a genetic test, how has it changed your life? If you have Alzheimer’s in your family but you’ve decided against a genetic test, what are your main reasons or concerns?
You don’t have to know your genetic status to take the survey. We just want to understand: As testing becomes more accessible, how do people feel about learning their genetic status as it relates specifically to Alzheimer’s disease or other dementias? These insights can help inform how research is conducted, and where it’s headed in the future.
Please consider taking 10 minutes to take our survey on genetics.
