How to Navigate an Early-Onset Alzheimer’s Diagnosis

By Being Patient | August 7th, 2019

Alzheimer’s researcher Judy Johanson shares first-hand wisdom for families facing an early-onset Alzheimer’s diagnosis.

People don’t expect that they’ll have to deal with Alzheimer’s in their 50s, but that is the reality for many families with loved ones who received an early-onset Alzheimer’s diagnosis.

We speak to Judy Johanson, a clinical research ambassador for Massachusetts Alzheimer’s Disease Research Center at Massachusetts General Hospital who cared for her late husband Steve after he was diagnosed with early-onset Alzheimer’s at 59 years old.

She provides advice for families caring for loved ones with early-onset Alzheimer’s.


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4 thoughts on “How to Navigate an Early-Onset Alzheimer’s Diagnosis

  1. My wife is having some issues with short term memory loss. Specialists are not certain of the cause as her cat scans appear normal. She did have a few TIA’s about 6 years ago, and it is thought this may be the reason for her short term memory loss??

  2. Thank you sooooo very much for your video and for sharing.

    Hi, My name is Susan, and i was recently diagnosed with early-onset Alzheimer’s. I cannot tell you how grateful I am for your voice and how you are advocating for people like your husband and indirectly, myself and my family. I will forward to my very loving and caring family because its the most and the least I could do to support them as we navigate through this profound life event together.

    From the bottom of my heart,
    I hope you keep us (your audience) in tune with how everything is going as life goes on for you.

    Again, I would like you to know that, on behalf of all the persons who has the disease, ( one of which is myself, (who is still
    able to articulate my experience while on this journey! and all others in this world,
    your sharing your experience with me (and the whole world) has given me hope again and desire to want to keep fighting/working with this disease.

    Again, on behalf of my very loving family and friends,
    Thank you,

    1. Hi Susan,
      My name is Terri and I am a 69 yr. old and am at the early stages of Alzheimer’s. I’m a retired nurse and very aware of what is to come.
      Family and even doctors will not talk to me about what I feel like and what I am experiencing. I think it makes them uncomfortable.
      I would just like to find a group who are in my shoes.
      I am able to communicate now and want to talk before I can’t.

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