Tune in for Deborah's talk at UCSF Memory and Aging Center Grand Rounds this Friday, June 23.
Here at Being Patient, we believe that listening more closely to people living with dementias like Alzheimer’s and their caregivers about their personal, first-hand experiences with neurodegenerative disease is vital to understanding — and treating — Alzheimer’s disease and other forms of dementia. This week, Being Patient Founder and Editor in Chief Deborah Kan will bring that message to University of California, San Francisco at the UCSF School of Medicine’s Grand Rounds.
“One of the things that has surprised me most in these years of overseeing Being Patient is that I learn just as much from the patient and caregiver population as I do from the world’s top experts in brain health and dementia research,” Kan said. “When our community shares their stories and insights on early signs, treatments, and living with dementia, I often wonder if scientists, doctors, and drug developers have any idea exactly just how much insight they could gain about diseases like Alzheimer’s from conversations like those we have here at Being Patient every day.”
The talk is tomorrow, Friday June 23, and 9 a.m. PT / 12 p.m. ET. Kan will give a keynote speech on the vital importance of the patient’s first-hand perspective of Alzheimer’s at the USCF Memory and Aging Center’s Grand Rounds event this Friday June 22. She’ll touch on these themes:
- Problems with the current diagnostic system for Alzheimer’s disease
- Patient solutions for tracking and analyzing cognitive decline
- Patient caregiver data insights on early diagnosis, hallucinations and clinical trial participation
- Reframing the conversation around living with dementia
Interested to learn more? You’re invited. To livestream the event for free, register here.
Organizers and attendees will include clinicians, researchers, medical students, and other Alzheimer’s experts, including Dr. Bruce L. Miller, Dr. Howard J. Rosen, Dr. Andrew Breithaupt, and Eleanor O’Brien.