What drives me is the great injustice over facing long-term illness and not understanding where the truth lies.
– Deborah Kan, founder of Being Patient
Being Patient is an editorially independent news and community platform that aims to create clarity around complex health issues and be a trusted, accurate source of information for the people impacted by a disease.
Launching Alzheimer’s in June 2017, we build single-subject platforms looking at health topics from the patient’s point of view. Through clear and compelling reporting, we examine the latest research and debates on the prevention, treatment and care of the disease. We find out what patients want to know and go straight to the expert community for the answers.
Our founder, Deborah Kan, left her job as Executive Producer at the Wall Street Journal last year to redesign reporting on health after her mother was diagnosed with Alzheimer’s disease. She found that there was no single place she could go, free of any bias, to help her understand the research. She founded Being Patient with one mission – to provide patients, caregivers and carriers of the Alzheimer’s gene the tools they need to navigate the disease and elevate the patient’s voice into important conversations on healthcare and research.
We want to hear from you – get in touch with ideas, insights and suggestions at firstname.lastname@example.org.
Being Patient in the Media
Listen to Being Patient on RTHK for Alzheimer’s Awareness Week