How do we make sure we are protecting our data?

Pay close attention to what your genetic provider says in their terms and agreements. Don’t check the box that gives these companies the consent to share your data – if you are paranoid about that kind of thing. Carefully read the user agreement, talk to a genetic counselor which can provide information your primary care doctor could not. They can give you help on how to protect your information. I will say that there is no way to completely protect your information.