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Rev. Dr. Cynthia Huling Hummel: “I’m an Alzheimer’s Clinical Trials Participant— Here’s How I Think They Need to Change”

April 18 @ 10:00 am - 10:30 am PDT

Free

On Thursday, April 18th at 10 a.m. PT/1 p.m. ET, author, artist, and Alzheimer’s advocate Rev. Dr. Cynthia Huling Hummel joins Being Patient Live Talks to discuss her journey from diagnosis of amnesiac cognitive impairment (aMCI) caused by Alzheimer’s disease to participating in research and working in advocacy. She’ll also be speaking about a proposed study participant’s bill of rights, of which she was a collaborator on. 

Hummel first noticed symptoms of cognitive decline at 49 years old, and was diagnosed with aMCI due to Alzheimer’s after seeking a diagnosis for eight years. Leaving full-time ministry in 2011, she now focuses on participating in research and advocating for people living with dementia. She currently serves on the National Advisory Council on Aging, National Academy of Sciences (NASEM), Alzheimer’s Clinical Trials Consortium (ACTC),  Dementia Action Alliance (DAA), and NIH/ NIA Advisory Group on Risk Evidence Education for Dementia (AGREED). 

She is also an author and an artist, with her book UnMasking Alzheimer’s: The Memories Behind the Masks featuring photography of several masks she’s made and her reflections on living well with Alzheimer’s disease. 

RSVP to her live talk to learn about her experience with diagnosis, research, advocacy, and living well with Alzheimer’s. 

Details

Date:
April 18
Time:
10:00 am - 10:30 am PDT
Cost:
Free

Organizer

Being Patient

Venue

Being Patient Facebook Page
View Venue Website

Rev. Dr. Cynthia Huling Hummel: From an aMCI Diagnosis to Advocating For Better Clinical Trials

On Thursday, April 18th at 10 a.m. PT/1 p.m. ET, author, artist, and Alzheimer’s advocate Rev. Dr. Cynthia Huling Hummel joins Being Patient Live Talks to discuss her journey from diagnosis of amnesiac cognitive impairment (aMCI) to participating in research and working in advocacy. She’ll also be speaking about a proposed study participant’s bill of rights, of which she was a collaborator on. 

15 Going
RSVP Here

One thought on “Rev. Dr. Cynthia Huling Hummel: “I’m an Alzheimer’s Clinical Trials Participant— Here’s How I Think They Need to Change”

  1. It concerns me greatly that caregivers are 2nd, the patient often times outlives the caregiver.. our society is so backwards. A caregiver is told to take care of themselves. I don’t think it happens that way< in my case I thought I would have a nervous breakdown. I never never want to do this again
    I am ill myself and I now have grief to deal with. I am not angry, etc, just stuck.

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