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Should I Get a Genetic Test for Alzheimer’s?

By | May 24th, 2018

We talk to Jamie Tyrone, who has two copies of the Apoe4 gene, putting her at greatly elevated risk of Alzheimer’s disease. She tells us about how genetic testing changed her life and what you need to consider before you get tested.

0:00 How genetic testing changed Jamie’s life
16:10 Making the decision: finding a genetic counsellor
23:20 How lifestyle and genetics may affect Alzheimer’s risk
44:20 The top things to consider before getting a genetic test

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Jamie Tyrone

Jamie Tyrone

Jamie Tyrone has two copies of the ApoE4 gene, which puts her at a 91% lifetime risk of getting Alzheimer’s disease, along with 2% percent of the U.S. population. A trained nurse and former marketing executive, she is now a full-time advocate for Alzheimer’s research. She is the founder of B.A.B.E.S., “Beating Alzheimer’s by Embracing Science,” a non-profit organization that raises funds and awareness for Alzheimer’s research. She is also a founding member of WomenAgainstAlzheimer’s (WA2), a movement of women – disproportionate victims of the disease as patients and caregivers – campaigning for a new approach to finding a cure and the adoption of a national plan for the prevention and treatment of Alzheimer’s disease. She has contributed recommendations to the National Alzheimer’s Project Act (NAPA) Advisory Council, set up by the Department of Health and Human Services, on their National Plan to address the prevention, care, management and public awareness of Alzheimer’s disease.

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