Being Patient: The Latest Developments on Alzheimer's Disease

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Latest News

Global Alzheimer’s Trial For China’s ‘Seaweed Drug’ Halted

By Simon Spichak, MSc | May 20th, 2022

This Alzheimer’s drug has already been approved for use in China. The clinical trials that could lead to approval in the U.S. have just…

chuck-mcclatchey-how-to-deal-with-an-alzheimers-diagnosis

Adapting to Life With an Alzheimer’s Diagnosis: An Air Force Vet’s ‘How To’

By Nicholas Chan | May 19th, 2022

Retired Air Force engineer Chuck McClatchey, who was diagnosed with Alzheimer’s at the age of 61, shares his story. Desert Storm veteran Chuck McClatchey,…

aduhelm amyloid clinicaltrial

FDA Ups ARIA Monitoring for Aduhelm; Doubles MRI Requirement

By Simon Spichak, MSc | May 18th, 2022

The Food and Drug Administration issued an update to Aduhelm’s label, now requiring a total of four MRIs during the first year of treatment…

protollin-nasal-alzheimers-vaccine-trials

16 People Are About to Help Test This Nasal Vaccine for Alzheimer’s

By Simon Spichak, MSc | May 17th, 2022

Human clinical trials kick off for Protollin, an experimental Alzheimer’s vaccine. After two decades of research and development, Brigham and Women’s Hospital has initiated…

Upcoming LiveTalks

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Join Our Next LiveTalk: A Daughter’s Alzheimer’s Diagnosis

Being Patient will speak with James Russell about his daughter Lynne Russell’s early-onset Alzheimer’s diagnosis. As part of our LiveTalk… More

The Quest for Treatments and Cures

By Simon Spichak, MSc | April 19th, 2022

What Is Tau — and Why Does It Matter in Alzheimer’s?

Scientists are exploring the role of tau tangles in Alzheimer’s, and whether addressing these misfolded proteins could treat the disease. Here’s what you need…

By Deborah Kan | December 6th, 2021

5 Ways Clinical Trials Test for Alzheimer’s

If you sign up to participate in an Alzheimer’s or dementia clinical trial, here are the five most common diagnostic technologies you might encounter….

Alzheimer's medications, drugs, therapies

By Nicholas Chan | September 27th, 2021

Your Guide to FDA-Approved Alzheimer’s Drugs

Here’s a primer on all the approved Alzheimer’s drugs designed to treat symptoms or slow disease progression — and a peek ahead at some…

By Alicia Barber | May 28th, 2021

Alzheimer’s Drugs Worth Repurposing?

If an experimental drug is only effective for a small percentage of clinical trial participants, should the therapy be abandoned for all? Nearly every…

By Simon Spichak, MSc | April 15th, 2022

Ka`imi A. Sinclair on the Imperative of Alzheimer’s Awareness in American Indian Communities

Ka`imi A. Sinclair has devoted her career to brain health equity in indigenous communities and to getting these communities more involved in Alzheimer’s and…

diversity dementia, Arthena Caston, Fayron Epps, David Williams

By Nicholas Chan | October 20th, 2021

Grassroots Solutions for Racial Equity in Dementia Care

A panel of speakers tackle the challenges of accessing healthcare for underrepresented communities and strategies to reduce the barriers for the diagnosis and treatment…

By Alicia Barber | September 30th, 2021

Sharing Our Alzheimer’s Journey on TikTok

Jacquelyn Revere sheds light on the challenges faced by young dementia caregivers through her incredibly popular TikTok account @MomOfMyMom. This article is part of…

Jalisco mutation, Andres Martin, alzheimer's

By Susanna Granieri | July 15th, 2021

The Jalisco Gene: A Military Pilot’s Story

Andres Martin, 34, discovered he has the Jalisco mutation—a rare genetic mutation that causes early-onset familial Alzheimer’s. Here’s how it unlocked a mystery about…

Being Patient Recommends

By Phil Gutis | April 7th, 2021

‘The Problem of Alzheimer’s’ Makes Us Mad—In a Good Way

A new book by Dr. Jason Karlawish shares largely untold stories the history of the Alzheimer’s crisis, discussing the science, missed opportunities, and reasons…

By Genevieve Glass | March 23rd, 2021

‘Supernova’: In This Moving Drama, Dementia Stars

Stanley Tucci and Colin Firth, two Hollywood greats, play a couple grappling with a dementia diagnosis in new romantic drama Supernova. Caring for someone…

Anthony Hopkins dementia movie The Father

By Alexandra Marvar | March 5th, 2021

‘That Dangerous Age’: Anthony Hopkins Performs Dementia

Anthony Hopkins plays an 80-year-old man with dementia in Florian Zeller’s new film ‘The Father.” (Image: Sean Gleason / Sony Pictures Classics) In a…

By Athena Hellmann | October 30th, 2020

Alzheimer’s Books: The Being Patient Reading List Pt. 3

Being Patient helps to create clarity around Alzheimer’s, dementia and related complex brain health issues by connecting our community of readers directly with trusted…

Better Brain Health

By Simon Spichak, MSc | April 7th, 2022

Long-Term Antibiotic Use Linked To Cognitive Decline

A large-scale study of 14,500 middle-aged women suggests that long-term antibiotic use could be linked to future brain health issues. To treat many common…

listening brain health, cognitive resilience, lifestyle, social interactions

By Nicholas Chan | September 29th, 2021

Science Says: We All Need Somebody to Lean On

New research shows that people who have someone they can count on as a good listener have more resilient brains than people who go…

By Nicholas Chan | August 6th, 2020

12 Ways To Help Prevent or Delay Dementia

Dementia is not necessarily preventable, but science has established that lifestyle changes can significantly lower risk. Here are 12 factors that could help delay…

By Vipul Kamani | January 25th, 2021

Super Agers’ Increased Alzheimer’s Resistance

Some older adults don’t develop the key biomarkers of Alzheimer’s, even in their 80s and 90s. Scientists try to crack the code about what…

Caregiving Corner

meditation caregiver, mindfulness, dementia, felipe jain

By Nicholas Chan | April 21st, 2022

Study: In Caregiving, These Mindfulness Practices Could Help

Coping with depression, anxiety, or insomnia? Research is finding that certain mindfulness practices can help make caregiving a little more manageable. Research studies on mentalizing…

Lynn Hallarman, late-stage dementia, Paula

By Nicholas Chan | August 2nd, 2021

Caregiving and Late-Stage Dementia

Palliative care physician Dr. Lynn Hallarman shares her own family’s journey caring for her late mother with dementia before and during the outbreak of…

dysphagia eating swallowing difficulties caregiver

By Nicholas Chan | November 25th, 2020

7 Ways to Ease Eating and Swallowing Difficulties

Swallowing issues can be a slippery slope to a number of other problems. Speech, language, eating and swallowing experts shares ways caregivers can identify,…

By Susanna Granieri | July 21st, 2021

1/3 of Families May Be Hiring Unqualified Caregivers

Caregiving costs can reach the price of college tuition, and families are looking for ways around the debt. A new survey finds that sometimes,…

Faces of Alzheimer's

A Conversation With Lauren Miller and Seth Rogen

By Genevieve Glass | February 22nd, 2021

Lauren Miller and Seth Rogen Fight Alzheimer’s With Comedy

Hollywood power couple Seth Rogen and his wife Lauren Miller Rogen are raising awareness about Alzheimer’s through comedy. On a more serious note, their…

By Alicia Barber | February 12th, 2021

TikTok Sisters Share Early-Onset Alzheimer’s Story

The sisters behind “The Kathy Project” use TikTok to share their journey with early-onset Alzheimer’s. Kathy and Jean Collins of British Columbia, Canada, downloaded…

By Genevieve Glass | February 4th, 2021

Singer Tony Bennett Opens Up About Alzheimer’s Diagnosis

The family of Tony Bennett announced that the legendary singer has been contending with an Alzheimer’s diagnosis since 2016. According to his neurologist, the…

By Nicholas Chan | November 10th, 2020

Ballerina With Alzheimer’s Revisits Swan Lake

A prima ballerina with Alzheimer’s disease remembers Tchaikovsky’s “Swan Lake;” details of her past as a dancer remain a mystery. The ability of music…

Patient and Caregiver Perspectives

Andrea Couture

Andrea Couture is the author of “Embracing What Remains,” a memoir about balancing motherhood and daughterhood following her father’s Alzheimer’s diagnosis. When my father,…

Lisa Marshall

April 23, 2021 Lisa Marshall is a caregiver to her husband Peter, who was diagnosed with early-onset Alzheimer’s. Lying on our bed, I sunk…

Marlene Jaxon

February 8, 2021 Marlene Jaxon was a caregiver to her mother with Alzheimer’s and the author of “Jinx!: Laughing in the Face of Alzheimer’s.” …

Dr. Renée Harmon

February 1, 2021 Dr. Renée Harmon was a caregiver to her husband and the author of “Surfing the Waves of Alzheimer’s.” Loving and caring…

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