We've launched a new interactive guide on FTD for bite-size learning, as well as a new Deep Dive page that covers all the details.
When we first launched Being Patient, we thought our website would only focus on Alzheimer’s disease, but shortly after launch, we realized this wouldn’t be possible, because so many people with other types dementia are misdiagnosed. We soon realized that to really help people understand and navigate this landscape, both in terms of science and in terms of care, we needed to add other dementias — like Lewy body and frontotemporal dementia — to our coverage.
Frontotemporal dementia has recently been publicized in the media because Hollywood actor Bruce Willis and his family made his FTD diagnosis public. As we’ve shared in our Live Talk series interviews, FTD can affect people as early as their 20s. Because the disease starts in the brain’s frontal lobe, personality, emotion and speech are more significantly impacted, as opposed to memory issues appearing first as they do in Alzheimer’s.
Adding to our educational offerings, we just launched an interactive learning guide on FTD. We hope it will be a resource for people — patients, family members, caregivers, doctors — to get a quick understanding of what FTD is, how it is diagnosed and what the latest research is. We’ve included excerpts from our interviews with Dr. Brad Dickerson, one of the world’s leading experts on FTD. We hope you find it helpful — we believe that equipping people with better information will lead to better outcomes in diagnosing, and living with, dementia.
We’ve also launched a new Deep Dive page that covers the topic start to finish, and links out to our coverage on FTD over the years.
So, for bite-sized learning, check out the guide. And for the nitty gritty explore our deep dive here.
